Hello, everyone! Good to see you all here, keeping the site moving and keeping me company as I watch the grass grow. I’ve come home from a hospital stay about two weeks ago (or was it three…?) and am in a brief period of exceptional health at the moment. It is a nice development, indeed! I have a proper post coming this weekend, but feel compelled to make a slight deviation from Breathe Easy’s usual format and update all of you with regards to a small matter of business.
The time of year for budget crunches, debates and more debates has at last come a-knocking. Every summer something comes up in either the state or national governments, and CFers begin to champion their own cause. In the past, I’ve found myself giving speeches to the Ohio government, or writing letters to both state and federal governments on the issue of CF coverage and research. On a few occasions I was even able to hold or take part in independent fundraisers for the cause. However, when it comes to matters of funding healthcare for diseases as expensive as CF, it takes an army. As some of you know Medicare is an important player in my health coverage, and Medicaid serves a valuable place; covering children and disabled adults alike. Every year the inclusion of CF becomes an issue. Of course, it seems silly that someone would find a disease which takes so many lives, and costs so much to treat, to not be debilitating. But it happens!
The following link is to the Cystic Fibrosis Foundation’s (CFF) website, and will take you directly to a shortcut to advocating on behalf of all CFers. If you click the link and fill out the small amount of required information, the site will enable you to send a prepared form letter to all of your local representatives and senators:
http://www.cff.org/GetInvolved/Advocate/TakeAction/
Please take a minute to remind Congress that CF is a real issue! On behalf of everyone: Thank you!
Love,
Gabe
Breathing Easy 